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The first months after a dementia diagnosis

There is time to plan after a diagnosis. Families who use it make better decisions later.

Quick answer

Get the legal documents in place while your parent can still sign them: a durable power of attorney, a designation of health care surrogate and a living will, and an updated will or trust; Florida requires specific signing formalities, so use an attorney.

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What should a Lee County family do first after a dementia diagnosis?

Get the legal documents in place while your parent can still sign them: a durable power of attorney, a designation of health care surrogate and a living will, and an updated will or trust; Florida requires specific signing formalities, so use an attorney.

Then list the doctors, medications, accounts and passwords, and make sure at least two family members know where they are.

When is it no longer safe for a person with dementia to live alone?

Living alone becomes unsafe when the person forgets to eat or take medications correctly, leaves the stove on, gets lost while driving or walking, falls for scams, or cannot respond in an emergency; any one of these is a reason to add help.

In Lee County, driving is often the hardest conversation because of how spread out the county is. A doctor's driving evaluation can take the decision out of the family's hands.

Where can Lee County caregivers find dementia support?

The Area Agency on Aging for Southwest Florida (1-866-413-5337) connects caregivers to respite, adult day programs, caregiver training and Florida's Alzheimer's Disease Initiative services, and local support groups meet throughout Fort Myers, Cape Coral and Bonita Springs.

AHCA licenses 14 adult day care centers in Lee County, in Fort Myers (6), Cape Coral (5), Lehigh Acres (2), North Fort Myers (1); see the adult day and family care roster. Adult day care is often the first paid service that gives a caregiver back a few hours.

When should a person with dementia move to memory care?

A move to memory care is usually right when safety at home cannot be maintained with the help available: wandering, nighttime confusion, aggression that the caregiver cannot manage, or a caregiver whose own health is failing.

Moving earlier, while the person can still adjust, is often easier than moving in a crisis from a hospital bed.

What should we know about Florida's memory care license before choosing?

Florida's new memory care services license (s. 429.076) will be required once AHCA's rules take effect, due by June 1, 2027, so ask any Lee County community you are considering whether it plans to apply and how it meets the current Alzheimer's care standard in s. 429.178.

32 of Lee County's 84 licensed ALFs report a memory care program on their AHCA profiles; together they hold 3,189 licensed beds, though not every one of those beds is in a memory care unit.

The short version

Early planning after a diagnosis isEarly planning after a diagnosis is not
LegalSigning documents while capacity remainsWaiting until a guardianship is needed
CareAdding help in stepsMoving immediately in every case
SupportUsing respite and day programsOne family member doing everything alone

Built from Chapters 400, 408, 429 and 651 of the Florida Statutes, Fla. Admin. Code chapters 59A-4, 59A-36 and 65A-2, and AHCA, DCF, OIR, Elder Affairs, CMS, VA and CareScout publications cited on the page; see our editorial standards.

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